How do you deal with everything that comes your way? I have been okay with everything, but I am having a hard time with dealing with my daughter's depression, dealing with my pain, the kids not listening, & not knowing how to deal with it all at the same time. I know she is having a hard time dealing with her depression & I don't need to add to it. I don't let her know I am having problems with it. I think it is seeing Ashleigh sad, not wanting to do anything, but lie around is hard for me.
Ashleigh has spastic paraparesis. It is hard to be different than her classmates. Walk different then them. Ash also has pain. It is in her legs & her back. This is all hard for an almost 11 year old to deal with. There are days where I have a hard time to deal with my pain & I am a lot older than 10.
Classmates today are different than when I was in school. Yea, there are still those mean ones, but now you can get teased/bullied through the internet, email, cell phones, etc. Add in being different. You do have those kids that are so sweet to kids like Ashleigh. I thank god for them & parents that taught them not to tease/bully other kids.
I know what it is like to live in pain. I want more for my daughter. I don't want the rest of her life to live in pain. I want her to do whatever she wants. Ash has accomplished a lot in her life. She learned to walk. She learned to climb onto things. These things she could not do when she was younger, but a physical therapist had to teach her.
I am trying my best at having a child with chronic pain & depression, 2 boys with asthma, & having chronic pain myself. I feel like each day I am running out of spoons & I am borrowing them from the next day (re to the Spoon Theory). Living in pain, it takes twice the effort. Add in kids that destroy what I just did. Well, that is not the case lately. My biggest problem is the older 2 can not keep their rooms clean. I can not walk in their rooms. It is not safe for me to.
Today I was close to a break down. Something happened & I could not handle it with my pain. I need help with the kids on the weekends, but no family is here to offer that help. Any suggestions? The weekends is when my husband works daylight, Noah has soccer, Ash sometimes has camp.
I miss the old me! The one, who could do everything like gardening, shopping as much as possible, cleaning, etc. Damn injuries, damn back surgery. I need to ...............?
We have good & bad days!
Melissa
Ashleigh has spastic paraparesis. It is hard to be different than her classmates. Walk different then them. Ash also has pain. It is in her legs & her back. This is all hard for an almost 11 year old to deal with. There are days where I have a hard time to deal with my pain & I am a lot older than 10.
Classmates today are different than when I was in school. Yea, there are still those mean ones, but now you can get teased/bullied through the internet, email, cell phones, etc. Add in being different. You do have those kids that are so sweet to kids like Ashleigh. I thank god for them & parents that taught them not to tease/bully other kids.
I know what it is like to live in pain. I want more for my daughter. I don't want the rest of her life to live in pain. I want her to do whatever she wants. Ash has accomplished a lot in her life. She learned to walk. She learned to climb onto things. These things she could not do when she was younger, but a physical therapist had to teach her.
I am trying my best at having a child with chronic pain & depression, 2 boys with asthma, & having chronic pain myself. I feel like each day I am running out of spoons & I am borrowing them from the next day (re to the Spoon Theory). Living in pain, it takes twice the effort. Add in kids that destroy what I just did. Well, that is not the case lately. My biggest problem is the older 2 can not keep their rooms clean. I can not walk in their rooms. It is not safe for me to.
Today I was close to a break down. Something happened & I could not handle it with my pain. I need help with the kids on the weekends, but no family is here to offer that help. Any suggestions? The weekends is when my husband works daylight, Noah has soccer, Ash sometimes has camp.
I miss the old me! The one, who could do everything like gardening, shopping as much as possible, cleaning, etc. Damn injuries, damn back surgery. I need to ...............?
We have good & bad days!
Melissa
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