Wednesday, April 20, 2011

Love this site

I am not sure any many of you have a friend or relative that lives in daily pain.  It does not matter what disease causes their pain because pain is pain.  How do you look at one in pain?  Do think you think "they look fine so they can not be in any pain?"  Just because we that live in daily pain look fine does not mean we are fine.  Doing simple things takes us awhile.  If you are completely healthy, you should feel blessed.  

I love The Spoon Theory because it is a great way of explaining how it is like to live in pain every day.  It is a must read.   We have to pick & choose what we do during any day.  By the end of the day, we may not be able to do anymore because of our pain is that bad.  My oldest son does not understand this.  He thinks I should be able to do everything.  Doing too much at 1 time is too much for me.  I have to rest in between everything.  Try telling an almost 7 year old we have to wait to do this or that.  He just does not get it.  I am not sure how to get him to understand this better.  

Endometriosis is dear to my heart because I have many friends living in pain from it & I once had it.  My endo was surgically removed & I was lucky to have it stay away.  It has been almost 6 years.  My son was 6 months old when I was diagnosed.  Taking care of an infant & being in pain was hard.  I learned to do short cuts.  Now that I am living with chronic back pain I still do short cuts.

Endometriosis "is an often painful disorder in which tissue that normally lines the inside of your uterus — the endometrium — grows outside your uterus. Endometriosis most commonly involves your ovaries, bowel or the 
tissue lining your pelvis. Rarely, endometrial tissue may spread beyond your pelvic region."


Common signs and symptoms of endometriosis may include:
  • Painful periods (dysmenorrhea). Pelvic pain and cramping may begin before and extend several days into your period and may include lower back and abdominal pain.
  • Pain with intercourse. Pain during or after sex is common with endometriosis.
  • Pain with bowel movements or urination. You're most likely to experience these symptoms during your period.
  • Excessive bleeding. You may experience occasional heavy periods (menorrhagia) or bleeding between periods (menometrorrhagia).
  • Infertility. Endometriosis is first diagnosed in some women who are seeking treatment for infertility.
  • Other symptoms. You may also experience fatigue, diarrhea, constipation, bloating or nausea, especially during menstrual periods.


It is not normal to have painful periods.  If a doctor tells you that the pain is in your head, don't listen to him/her.  The pain is real.  Thank you for taking the time to read this.  Endometriosis awareness is needed badly.  We need to get doctors out there to help those in pain.  To get better techniques to remove the endo.  Better care in managing the pain.  We also need to get the doctors to listen to their patients better.  The patients are the ones, who live in pain every day.  They know their bodies better than they do.

Yellow Hugs, 
Melissa

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