I keep wondering why does this have to happen. Why does some kids are healthy while others are not? Why? I took Ashleigh to her rehab doctor last month. I love her. She takes the time to listen to all of our concerns. She was running 45 minutes behind, but I knew she would give Ashleigh all her attention once she came into the room.
We went through a lot of information with her doctor. I was told to get the house prepared for a wheelchair because it is coming sooner than later. Ashleigh's left side is having some problems. Ashleigh's left side is getting weaker. She is having more trouble with her walking. Her left foot is turning in towards her right foot more often. The longer Ash walks the worse this gets. I have a habit of watching Ash walk. I have been doing it since she started walking. It is second nature to me. I was confirmed my fear- that Ashleigh is getting weaker on her left side. We knew this day would come one day, but I have been praying for many many many years down the road.
At the appointment, I did ask about Ashleigh and driving. It will be here before I know it. I was told that Ash will be sent down to this center to be tested to see if she can drive. She will need hand gears. We have 2.5 years, but I wanted to know the what ifs. At times, Ashleigh brings this up.
After we were done with Ethan & Ashleigh's eye appointment, I had to run into a store so I could get Noah's Valentine's for his class. (Shawn took the kids with him so I could get this done plus a trip to the grocery store) Have you ever been in a store where the cashier is complaining about her life and you wanted to tell her to shut the hell up because there are people out there worse off than you (she) is? Well, this day I held it in. I am still not sure how I did it. Maybe I was still in shock. Maybe I just did not want anyone to know yet (Shawn knew once I saw him). Trying to explain to a stranger what HSP is and why it is the way it is is very hard for me. Each time I am not sure if I am explaining it right.
With Ashleigh, we knew something was wrong when she was 12 months old. We had no idea how things would go. It took us 8 years for her main diagnosis, HSP.
For those with healthy kids, I am very happy for you, but please understand that our special needs kids are happy children. They need respect, kindness, love from others. My child will not be able to do everything that your child can. Yes, I have know this for many years, but when you are told that your child will be in a wheelchair soon, it breaks your heart. I do want you to share with me your child's accomplishments. I am happy that your child is being success in whatever they do.
I wrote this shortly after this appointment, but I forgot to publish it. I have dealt with what I need to do and I am ready to face it head on.
Have you ever wondered why?
Melissa
At the appointment, I did ask about Ashleigh and driving. It will be here before I know it. I was told that Ash will be sent down to this center to be tested to see if she can drive. She will need hand gears. We have 2.5 years, but I wanted to know the what ifs. At times, Ashleigh brings this up.
After we were done with Ethan & Ashleigh's eye appointment, I had to run into a store so I could get Noah's Valentine's for his class. (Shawn took the kids with him so I could get this done plus a trip to the grocery store) Have you ever been in a store where the cashier is complaining about her life and you wanted to tell her to shut the hell up because there are people out there worse off than you (she) is? Well, this day I held it in. I am still not sure how I did it. Maybe I was still in shock. Maybe I just did not want anyone to know yet (Shawn knew once I saw him). Trying to explain to a stranger what HSP is and why it is the way it is is very hard for me. Each time I am not sure if I am explaining it right.
With Ashleigh, we knew something was wrong when she was 12 months old. We had no idea how things would go. It took us 8 years for her main diagnosis, HSP.
For those with healthy kids, I am very happy for you, but please understand that our special needs kids are happy children. They need respect, kindness, love from others. My child will not be able to do everything that your child can. Yes, I have know this for many years, but when you are told that your child will be in a wheelchair soon, it breaks your heart. I do want you to share with me your child's accomplishments. I am happy that your child is being success in whatever they do.
I wrote this shortly after this appointment, but I forgot to publish it. I have dealt with what I need to do and I am ready to face it head on.
Have you ever wondered why?
Melissa
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