Craziness

The kids are running around having fun earlier tonight (well last night now). I was loving it. Yes, I was in a lot of pain, but I didn't care. They were having a lot of fun. That is all the matters. Noah was making the police siren. Of course, Ethan within minutes was making the same police siren. I was telling Noah to calm down the noise, but it was Ethan. Ethan loves to copy the other 2. I have been seeing it a lot lately. This is how Ethan learned to kicked the soccer ball. He watched Noah do it. He is only 1, but boy, he can kick a soccer ball. Ethan will be following his brother's footsteps in playing soccer. I can not wait to cheer him on.

I joined a list serv for HSP. Ash has a form of it called Spastic Paraparesis. I am hoping it helps me with Ash. Now & in the future. I sent in my introduction email last night. These are adults with HSP. Some of them diagnosed later in life like in their 30s. It took us years for a diagnose for Ash. 8 years. I am also helping I learn a lot. I do have a question for them all. Is leg pain a part of HSP? In November, it will be 4 years that the pain started. 4 years. Yes, meds is controlling her pain now, but those meds have been changed, & increased. I know that that can happen again. The first med she was put on increasing wasn't safe for Ash. The 1 side effect could affect her heart so we decided not to increase that med, but to try something else that was safer & it has been working ever since. It was also increased.

Night!

Mel